Unedited excerpt from the upcoming book Viking Funeral. Scroll down for previous chapters. Thank you all for reading this far, for all your comments, and for letting me drop all these words on the world of you. XO M
At some point about a year after being in the hospital, Dave had made as much of a recovery as he was going to. Staying in the hospital was not what he needed. It was decided that he would go to another facility for disabled individuals, Rancho Los Amigos, in Downey, California. He was there for rehab, to learn how to live the rest of his life as a quadriplegic, a “quad,” a completely paralyzed man. It was at this place that he was fitted for his first electric wheelchair and learned to use it with his mouth operated controls. This facility supports those with life-changing disabilities, so I am sure they serve people beyond spinal injuries, but I don’t recall anyone walking around.
He was there for months and eventually began coming home on the weekends. I am sure these weekends were preparing my parents to care for him more than anything. I rode with my parents to pick him up for the weekend. There was what felt like to my 8-year-old self at that time, a lot of intense energy in this place, especially compared to the oppressive silence of Wing 700 at SBCH. You had to pay attention to what could have been a freight train of mass flying one way or the other, paraplegics who could use their arms, were racing each other in traditional wheelchairs down long hallways, shouting competitive jabs at each other laughing as they wheeled themselves down the hall neck-and-neck at breakneck speeds if I dare say. Who would have thought those words would be put to use in this way before…but I witnessed it, and it was fine. It felt like a frat house, minus the booze and chicks. No one chose to be a member, but the spirit of the place was pretty pleasantly wild.
He eventually transitioned to being at home full time with my parents caring for his every physical need. Of course, everyone else, family or friend(s) helped out with simple things like feeding him, filling his water thermos, holding the phone to his ear while he talked, scratching an itch, wiping his eyes with a cloth, turning on the radio, putting on a record, or changing the channel on the TV way before the days of remote controls. We didn’t usually bathe him, dress him, or put him in his wheelchair, but on rare occasions we did. Our parents carried out that more personal care. He didn’t get up in his wheelchair every day, but he had a sponge bath and a change of sheets on his bed every day. My parent’s personal care for him kept him bedsore free for the entire time they cared for him, which was more than 35 years. For those who understand the nature of bedsores and paralyzed people, this is a big deal…no bedsores, 35 years. By comparison, Christopher Reeves reportedly suffered with bedsores in his brief life following his accident… plenty of money, just not the right care. That is how well cared for Dave was. When Dave heard about “Superman” having bedsores, he tried to figure out how to get in touch with him or his people to shed some light on how to avoid bedsores but didn’t get through. By the way, the secret is understanding moisture and friction are what cause bedsores. My parents used a combination of lambs wool and lots of baby powder to wick away moisture from his body.
His friends continued to visit him daily when he returned home. Our house swelled on the weekends into THE party house. There was always beer and music. There were usually 20-30 people every Friday and Saturday night. Romances budded. Poker games were hosted. There was so much beer and always great music.
I loved hearing the guys sing the lyrics to Shattered by the Rolling Stones… they mumbled through most of the complicated early rap-like verses but always managed to shout ‘and sex and sex and sex and sex and look at me….I’m in tatters! Shadobee, I’m shattered, what ya say? Shadobee, I’m shattered.” Or another favorite of theirs (and mine) lyrics from Miss You, also by the Stones. The Imaginary Band as they, his friends referred to themselves, belted out the chorus “Who who ooo ooo oo oo, who ooo ooo oo oooo oo oo, Lord I miss you!!” In sloppy drunken harmony.
Saturday mornings, it was my job to empty the trash. I mentioned previously my five-minute job that I managed to take all day to complete, was to empty all the trash cans in the house. Sunday I also emptied his trash can again. He had a large metal trashcan that was designed to look like a Coors Beer Can. It is a good thing it was metal, and it was a good thing it didn’t leak. His trash can was always very heavy with stinky, leaking the dregs of those beer bottles. It was an expected outcome of so much fun. Our house was healing. I was so happy to once again live in a house full of laughter, actually, more laughter than ever.
Annie Stubbs came by my parents’ house to visit with Dave too, she called to check-in on him every now and then. She sent him a card on his birthday with $5, forever. They had such a sweet appreciation for each other, it was lovely to witness. I would sometimes answer the phone to Annie asking to speak to David. In the early years, I would hold the phone up to Dave’s ear while he spoke to her. His excited to hear from her side of the conversation would sound something like this, “I’m just FIIIIINE Annie! How are YOU? Oh, ya, I can’t complain either. I’m just layin’ around (giggles at his joke about himself) watchin’ the boob tube. What’s new with YOOOU? That sounds nice. (PAUSE) Oh, that is so very kind of you to check on me, thank you so much, Annie, Ok, thank you again, Byyyyye.” You could hear the smile and appreciation in his tone as he spoke to her. I just loved hearing my brother talking to this sweet little old lady.
My parents had a den upstairs where they retired after dinner to watch television. When Dave first came home, they, my dad, had to go downstairs to answer the door every evening to let the first person who arrived in. From that point on, whoever was in Dave’s room would answer the door for the rest of the evening.
Over a very short period, my parents had extra keys made so they would not have to go all the way downstairs to answer. I have no idea how many keys floated out and about among his friends. I had no idea of this brilliant tactic until many years later when Brian let himself in the front door ahead of me with a key from his key ring as we were both heading in the door. I remarked, “Oh, you have a key? ” He said with an obvious tone that conveyed, Of course, I’ve got a key when he said: “Uh, I’ve had it for… decades.” I loved finding that out. I told Dave about it later, and he had the same tone of duh, “Many keys have been handed out.” Made sense. My parents really were smart. This was the extra sandwiches make life easier logic in full force…but morphed into house keys.
After Dave left the building, it was suggested that my mom really consider changing the locks and she did so making all those keys obsolete. Brian was given a new key. My son has a key. I don’t think I have a key.